The effectiveness and cost‐effectiveness of inpatient specialist palliative care in acute hospitals for adults with advanced illness and their caregivers
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Additional references
Allen RS, Hilgeman MM, Ege MA, Shuster JL, Burgio LD. Legacy activities as interventions approaching the end of life. Journal of Palliative Medicine 2008;11(7):1029‐38.
Back AL, Li Y‐F, Sales AE. Impact of palliative care case management on resource use by patients dying of cancer at a Veterans Affairs medical center. Journal of Palliative Medicine 2005;8(1):26‐35.
Bausewein C, Calanzani N, Daveson BA, Simon ST, Ferreira PL, Higginson IJ, et al. ‘Burden to others’ as a public concern in advanced cancer: a comparative survey in seven European countries. BMC Cancer 2013;13:105.
Bendaly EA, Groves J, Juliar B, Gramelspacher GP. Financial impact of palliative care consultation in a public hospital. Journal of Palliative Medicine 2008;11(10):1304‐8.
Bodenbach M. Developing a bereavement services component for an urban teaching hospital's new palliative care program: a four‐target survey approach. Journal of Palliative Medicine 2005;8(4):713‐5.
Coalition to Transform Advanced Care (C‐TAC). Policy Agenda: Options to Transform Advanced Care. www.thectac.org/wp‐content/uploads/2015/02/C_TAC‐Policy‐Agenda.pdf (accessed 31 January 2017).
Center to Advance Palliative Care. Growth of Palliative Care in U.S. hospitals. 2014 snapshot. www.capc.org/media/filer_public/6d/db/6ddbbaa1‐0c03‐4e34‐9186‐696bbc158950/capc_growth_snapshot_2014.pdf (accessed 31 January 2017).
Cassel JB, Webb‐Wright J, Holmes J, Lyckholm L, Smith TJ. Clinical and financial impact of a palliative care program at a small rural hospital. Journal of Palliative Medicine 2010;13(11):1339‐43.
Ciemins EL, Blum L, Nunley M, Lasher A, Newman JM. The economic and clinical impact of an inpatient palliative care consultation service: a multifaceted approach. Journal of Palliative Medicine 2007;10(6):1347‐55.
Cochrane Effective Practice, Organisation of Care (EPOC). EPOC resources for review authors. 2017. Available at epoc.cochrane.org/epoc‐resources‐review‐authors (accessed 16 May 2017).
Cowan JD. Hospital charges for a community inpatient palliative care program. American Journal of Hospice and Palliative Medicine 2004;21(3):177‐90.
Crown. More care, less pathway: a review of the Liverpool Care Pathway. www.gov.uk/government/uploads/system/uploads/attachment_data/file/212450/Liverpool_Care_Pathway.pdf (accessed 31 January 2017).
Daveson BA, Alonso JP, Calanzani N, Ramsenthaler C, Gysels M, Antunes B, et al. Learning from the public: citizens describe the need to improve end‐of‐life care access, provision and recognition across Europe. European Journal of Public Health 2013;24(3):521‐7.
Daveson BA, Harding R, Shipman C, Mason BL, Epiphaniou E, Higginson IJ, et al. The real‐world problem of care coordination: a longitudinal qualitative study with patients living with advanced progressive illness and their unpaid caregivers. PLOS ONE 2014;9(5):e95523.
Department of Health. End of Life Care Strategy: Promoting high quality care for adults at the end of their life. www.gov.uk/government/uploads/system/uploads/attachment_data/file/136431/End_of_life_strategy.pdf (accessed 31 January 2017).
Drummond MF, Jefferson TO. Guidelines for authors and peer reviewers of economic submissions to the BMJ. BMJ 1996;313(7052):275‐83.
Engelhardt JB, McClive‐Reed KP, Toseland RW, Smith TL, Larson DG, Tobin DR. Effects of a program for coordinated care of advanced illness on patients, surrogates, and healthcare costs: a randomized trial. American Journal of Managed Care 2006;12(2):93‐100.
Evans CJ, Ho Y, Daveson BA, Hall S, Higginson IJ, Gao W, et al. Place and cause of death in centenarians: a population‐based observational study in England, 2001 to 2010. PLOS Medicine 2014;11(6):e1001653.
Evers S, Goossens M, de Vet H, van Tulder M, Ament A. Criteria list for assessment of methodological quality of economic evaluations: Consensus on Health Economic Criteria. International Journal of Technology Assessment in Health Care 2005;21(2):240‐5.
Field D, Reid D, Payne S, Relf M. Survey of UK hospice and specialist palliative care adult bereavement services. International Journal of Palliative Nursing 2004;10(12):569‐76.
Gade G, Venohr I, Conner D, McGrady K, Beane J, Richardson RH, et al. Impact of an inpatient palliative care team: a randomized control trial. Journal of Palliative Medicine 2008;11(2):180‐90.
Gomes B, Calanzani N, Curiale V, McCrone P, Higginson IJ. Effectiveness and cost‐effectiveness of home palliative care services for adults with advanced illness and their caregivers. Cochrane Database of Systematic Reviews 2013, Issue 6. [DOI: 10.1002/14651858.CD007760.pub2]
McMaster University (developed by Evidence Prime). GRADEpro GDT. Version accessed 31 January 2017. Hamilton (ON): McMaster University (developed by Evidence Prime), 2015.
Gruneir A, Mor V, Weitzen S, Truchil R, Teno J, Roy J. Where people die: a multilevel approach to understanding influences on site of death in America. Medical Care Research and Review 2007;64(4):351‐78.
Gysels M, Richardson A, Higginson IJ. Communication training for health professionals who care for patients with cancer: a systematic review of effectiveness. Supportive Care in Cancer 2004;12(10):692‐700.
Gómez‐Batiste X, Tuca A, Corrales E, Porta‐Sales J, Amor M, Espinosa J, et al. Resource consumption and costs of palliative care services in Spain: a multicenter prospective study. Journal of Pain and Symptom Management 2006;31(6):522‐32.
Hanson LC, Usher B, Spragens L, Bernard S. Clinical and economic impact of palliative care consultation. Journal of Pain and Symptom Management 2008;35(4):340‐6.
Harding R, Epiphaniou E, Chidgey‐Clark J. Needs, experiences, and preferences of sexual minorities for end‐of‐life care and palliative care: a systematic review. Journal of Palliative Medicine 2012;15(5):602‐11.
Harris I, Murray SA. Can palliative care reduce futile treatment? A systematic review. BMJ Supportive and Palliative Care 2013;3(4):389‐98.
Higgins JP, Green S, editor(s). Cochrane Handbook for Systematic Reviews of Interventions Version 5.1.0 (updated March 2011). The Cochrane Collaboration, 2011. Available from handbook.cochrane.org.
Higgins JPT, Altman DG, Sterne JAC on behalf of the Cochrane Statistical Methods Group and the Cochrane Bias Methods Group. Chapter 8: Assessing risk of bias in included studies. In: Higgins JP, Green S, editor(s). Cochrane Handbook for Systematic Reviews of Interventions Version 5.1.0 (updated March 2011). The Cochrane Collaboration, 2011. Available from handbook.cochrane.org.
Higginson IJ, Finlay I, Goodwin DM, Cook AM, Hood K, Edwards AG, et al. Do hospital‐based palliative teams improve care for patients or families at the end of life?. Journal of Pain and Symptom Management 2002;23(2):96‐106.
Higginson IJ, Finlay IG, Goodwin DM, Hood K, Edwards AG, Cook A, et al. Is there evidence that palliative care teams alter end‐of‐life experiences of patients and their caregivers?. Journal of Pain and Symptom Management 2003;25(2):150‐68.
Higginson IJ, Hart S, Burman R, Silber E, Saleem T, Edmonds P. Randomised controlled trial of a new palliative care service: Compliance, recruitment and completeness of follow‐up. BMC Palliative Care 2008;7:7.
Higginson IJ, Evans CJ. What is the evidence that palliative care teams improve outcomes for cancer patients and their families?. Cancer Journal 2010;16(5):423‐35.
Ho TH, Barbera L, Saskin R, Lu H, Neville BA, Earle CC. Trends in the aggressiveness of end‐of‐life cancer care in the universal health care system of Ontario, Canada. Journal of Clinical Oncology 2011;29(12):1587‐91.
Hudson PL, Aranda S, Hayman‐White K. A psycho‐educational intervention for family caregivers of patients receiving palliative care: a randomized controlled trial. Journal of Pain and Symptom Management 2005;30(4):329‐41.
Husereau D, Drummond M, Petrou S, Carswell C, Moher D, Greenberg D, et al. Consolidated Health Economic Evaluation Reporting Standards (CHEERS) statement. BMJ 2013;346:f1049.
James Lind Alliance. Palliative and end of life care Priority Setting Partnership: Putting patients, carers and clinicians at the heart of palliative and end of life care research (PeolcPSP). January 2015. https://palliativecarepsp.files.wordpress.com/2015/01/peolcpsp_final_report.pdf (accessed 31 January 2017).
Kamal AH, Currow DC, Ritchie CS, Bull J, Abernethy AP. Community‐based palliative care: the natural evolution for palliative care delivery in the US. Journal of Pain and Symptom Management 2013;46(2):254‐64.
Kashihara D, Carper K. National Health Care Expenses in the U.S. Civilian Noninstitutionalized Population, 2009. Statistical Brief #355. January 2012. https://meps.ahrq.gov/data_files/publications/st355/stat355.pdf (accessed 31 January 2017).
Kato PM, Mann T. A synthesis of psychological interventions for the bereaved. Clinical Psychology Review 1999;19(3):275‐96.
Lafond S, Arora S, Charlesworth A, McKeon A. Into the red? The state of the NHS’ finances. An analysis of NHS expenditure between 2010 and 2014. July 2014. https://www.nuffieldtrust.org.uk/files/2017‐01/into‐the‐red‐nhs‐finances‐web‐final.pdf (accessed 31 January 2017).
Lau J, Ioannidis JPA, Terrin N, Schmid CH, Olkin I. The case of the misleading funnel plot. BMJ 2006;333(7568):597‐600.
Liberati A, Altman DG, Tetzlaff J, Mulrow C, Gøtzsche PC, Ioannidis JPA, et al. The PRISMA statement for reporting systematic reviews and meta‐analyses of studies that evaluate health care interventions: explanation and elaboration. PLOS Medicine 2009;6(7):e1000100.
Lichtenthal WG, Nilsson M, Kissane DW, Breitbart W, Kacel E, Jones EC, et al. Underutilization of mental health services among bereaved caregivers with prolonged grief disorder. Psychiatric Services 2011;62(10):1225‐9.
Lo JC. The impact of hospices on health care expenditures‐‐the case of Taiwan. Social Science and Medicine 2002;54(6):981‐91.
McMillan SC, Small BJ, Weitzner M, Schonwetter R, Tittle M, Moody L, et al. Impact of coping skills intervention with family caregivers of hospice patients with cancer: a randomized clinical trial. Cancer 2006;106(1):214‐22.
Meier DE. Increased access to palliative care and hospice services: opportunities to improve value in health care. Milbank Quarterly 2011;89(3):343‐80.
Morrison RS, Penrod JD, Cassel JB, Caust‐Ellenbogen M, Litke A, Spragens L, et al. Cost savings associated with US hospital palliative care consultation programs. Archives of Internal Medicine 2008;168(16):1783‐90.
Morrison RS, Dietrich J, Ladwig S, Quill T, Sacco J, Tangeman J, et al. Palliative care consultation teams cut hospital costs for Medicaid beneficiaries. Health Affairs (Project Hope) 2011;30(3):454‐63.
Murray SA, Kendall M, Boyd K, Sheikh A. Illness trajectories and palliative care. BMJ 2005;330(7498):1007‐11.
Murray CJL, Vos T, Lozano R, Naghavi M, Flaxman AD, Michaud C, et al. Disability‐adjusted life years (DALYs) for 291 diseases and injuries in 21 regions, 1990‐2010: a systematic analysis for the Global Burden of Disease Study 2010. Lancet 2012;380(9859):2197‐223.
Murtagh FE, Bausewein C, Verne J, Groeneveld EI, Kaloki YE, Higginson IJ. How many people need palliative care? A study developing and comparing methods for population‐based estimates. Palliative Medicine 2014;28(1):49‐58.
National Consensus Project (NCP) for Quality Palliative Care. Clinical Practice Guidelines for Quality Palliative Care, 3rd edition. 2013. https://www.hpna.org/multimedia/NCP_Clinical_Practice_Guidelines_3rd_Edition.pdf (accessed 31 January 2017).
National Council for Palliative Care (NCPC), developed in collaboration with: Association for Palliative Medicine of Great Britain and Ireland, Consultant Nurse in Palliative Care Reference Group, Marie Curie Cancer Care, National Council for Palliative Care, Palliative Care Section of the Royal Society of Medicine. Commissioning Guidance for Specialist Palliative Care: Helping to deliver commissioning objectives. December 2012. http://www.ncpc.org.uk/sites/default/files/CommissioningGuidanceforSpecialistPalliativeCare.pdf (accessed 31 January 2017).
National Institute for Health and Care Excellence. NICE Process and Methods Guides. The NICE Public Health Guidance Development Process. London: National Institute for Health and Care Excellence, 2012.
National Institute of Health (NIH). State‐of‐the‐Science Conference Statement on improving end‐of‐life care. NIH Consensus and State‐of‐the‐Science Statements 2004;21(3):1‐26.
Palliative Care Australia. A Guide to Palliative Care Service Development: A population based approach. February 2005. http://palliativecare.org.au/wp‐content/uploads/2015/05/A‐guide‐to‐palliative‐care‐service‐development‐a‐population‐based‐approach.pdf (accessed 31 January 2017).
Payne S, Hudson P, Grande G, Oliviere O, Tishelman C, Pleschberger S, et al. White paper on improving support for family carers in palliative care: Part 1: Recommendations from the European association for palliative care (EAPC) task force on family carers. European Journal of Palliative Care 2010;17(5):238‐45.
Payne S, Hudson P, Grande G, Oliviere O, Tishelman C, Pleschberger S, et al. White Paper on improving support for family carers in palliative care: Part 2: Recommendations from the European Association for Palliative Care (EAPC) Task Force on Family Carers. European Journal of Palliative Care 2010;17(6):286‐90.
Penrod JD, Deb P, Luhrs C, Dellenbaugh C, Zhu CW, Hochman T, et al. Cost and utilization outcomes of patients receiving hospital‐based palliative care consultation. Journal of Palliative Medicine 2006;9(4):855‐60.
Penrod JD, Deb P, Dellenbaugh C, Burgess JF, Zhu CW, Christiansen CL, et al. Hospital‐based palliative care consultation: effects on hospital cost. Journal of Palliative Medicine 2010;13(8):973‐9.
Public Health England. Cost‐effective commissioning of end of life care: Understanding the health economics of palliative and end of life care. 2017. Available from: https://www.gov.uk/government/publications/end‐of‐life‐care‐economic‐tool (accessed 16 May 2017).
Philips Z, Ginnelly L, Sculpher M, Claxton K, Golder S, Riemsma R, et al. Review of guidelines for good practice in decision‐analytic modelling in health technology assessment. Health Technology Assessment 2004;8(36):iii‐iv, ix‐xi, 1‐158.
Pinnock H, Kendall M, Murray SA, Worth A, Levack P, Porter M, et al. Living and dying with severe chronic obstructive pulmonary disease: multi‐perspective longitudinal qualitative study. BMJ 2011;342:d142.
Puhan MA, Soesilo I, Guyatt GH, Schünemann HJ. Combining scores from different patient reported outcome measures in meta‐analyses: when is it justified?. Health and Quality of Life Outcomes 2006;4:94.
Quill TE, Abernethy AP. Generalist plus specialist palliative care‐‐creating a more sustainable model. New England Journal of Medicine 2013;368(13):1173‐5.
Royal College of Physicians. End of Life Care Audit – Dying in Hospital: National report for England 2016. Available from https://www.rcplondon.ac.uk/projects/outputs/end‐life‐care‐audit‐dying‐hospital‐national‐report‐england‐2016 (accessed 31 January 2017).
Reid D, Field D, Payne S, Relf M. Adult bereavement in five English hospices: types of support. International Journal of Palliative Nursing 2006;12(9):430‐7.
Nordic Cochrane Centre, The Cochrane Collaboration. Review Manager 5 (RevMan 5). Version 5.3. Copenhagen: Nordic Cochrane Centre, The Cochrane Collaboration, 2014.
Rinck GC, van den Bos GA, Kleijnen J, de Haes HJ, Schadé E, Veenhof CH. Methodologic issues in effectiveness research on palliative cancer care: a systematic review. Journal of Clinical Oncology 1997;15(4):1697‐707.
Rodgers M, Sowden A, Petticrew M, Arai L, Roberts H, Britten N, et al. Testing methodological guidance on the conduct of narrative synthesis in systematic reviews: Effectiveness of interventions to promote smoke alarm ownership and function. Evaluation 2009;15(1):49‐73.
Schünemann HJ, Oxman AD, Vist GE, Higgins JPT, Deeks JJ, Glasziou P, Guyatt GH on behalf of the Cochrane Applicability and Recommendations Methods Group. Chapter 12: Interpreting results and drawing conclusions. In: Higgins JP, Green S, editor(s). Cochrane Handbook for Systematic Reviews of Interventions Version 5.1.0 (updated March 2011). The Cochrane Collaboration, 2011. Available from handbook.cochrane.org.
Shipman C, Gysels M, White P, Worth A, Murray SA, Barclay S, et al. Improving generalist end of life care: national consultation with practitioners, commissioners, academics, and service user groups. BMJ 2008;337:a1720.
Simoens S, Kutten B, Keirse E, Berghe PV, Beguin C, Desmedt M, et al. Costs of terminal patients who receive palliative care or usual care in different hospital wards. Journal of Palliative Medicine 2010;13(11):1365‐9.
Smith TJ, Coyne P, Cassel B, Penberthy L, Hopson A, Hager MA. A high‐volume specialist palliative care unit and team may reduce in‐hospital end‐of‐life care costs. Journal of Palliative Medicine 2003;6(5):699‐705.
Smith SM, Soubhi H, Fortin M, Hudon C, O'Dowd T. Managing patients with multimorbidity: systematic review of interventions in primary care and community settings. BMJ 2012;345:e5205.
Starks H, Diehr P, Curtis JR. The challenge of selection bias and confounding in palliative care research. Journal of Palliative Medicine 2009;12(2):181‐7.
Sterne JAC, Egger M, Smith GD. Systematic reviews in health care: Investigating and dealing with publication and other biases in meta‐analysis. BMJ 2001;323(7304):101‐5.
Strobe MS, Hansson RO, Stroebe W, Schut H. Introduction: concepts and issues in contemporary research on bereavement. In: Stroebe MS, Hansson RO, Stroebe W, Schut H editor(s). Handbook of Bereavement Research: Consequences, Coping and Care. 1st Edition. Washington, DC: American Psychological Association, 2001:3‐22.
Sullivan R, Peppercorn J, Sikora K, Zalcberg J, Meropol NJ, Amir E, et al. Delivering affordable cancer care in high‐income countries. Lancet Oncology 2011;12(10):933‐80.
Temel JS, Greer JA, Muzikansky A, Gallagher ER, Admane S, Jackson VA, et al. Early palliative care for patients with metastatic non‐small‐cell lung cancer. New England Journal of Medicine 2010;363(8):733‐42.
van Tulder M, Furlan A, Bombardier C, Bouter L, Editorial Board of the Cochrane Collaboration Back Review Group. Updated method guidelines for systematic reviews in the Cochrane Back and Neck Review Group. Spine 2003;28(12):1290‐9.
Walsh J, Young JM, Harrison JD, Butow PN, Solomon MJ, Masya L, et al. What is important in cancer care coordination? A qualitative investigation. European Journal of Cancer Care 2011;20(2):220‐7.
Ward‐Smith P, Korphage RM, Hutto CJ. Where health care dollars are spent when pediatric palliative care is provided. Nursing Economic$ 2008;26(3):175‐8.
White KR, Stover KG, Cassel JB, Smith TJ. Nonclinical outcomes of hospital‐based palliative care. Journal of Healthcare Management 2006;51(4):260‐73; discussion 273‐4.
World Health Organization Quality of Life Group (WHOQOL). The World Health Organization Quality of Life (WHOQOL) Assessment: position paper from the World Health Organization. Social Science and Medicine 1995;41(10):1403‐9.
World Palliative Care Alliance (WPCA), World Health Organization (WHO). Global Atlas of Palliative Care at the End of Life. January 2014. Available from http://www.who.int/cancer/publications/palliative‐care‐atlas/en/. London: World Palliative Care Alliance, (accessed 31 January 2017).
Zhao Y, Encinosa W. The Costs of End‐of‐Life Hospitalizations, 2007. Healthcare Cost and Utilisation Project (HCUP) Statistical Brief #81. 2010. www.hcup‐us.ahrq.gov/reports/statbriefs/sb81.jsp (accessed 31 January 2017).
Zimmermann C, Swami N, Krzyzanowska M, Hannon B, Leighl N, Oza A, et al. Early palliative care for patients with advanced cancer: a cluster‐randomised controlled trial. Lancet 2014;383(9930):1721‐30.
