Scolaris Content Display Scolaris Content Display

Interventions to help support caregivers of people with a brain or spinal cord tumour

Esta versión no es la más reciente

Referencias

Additional references

Aaronson 1993

Aaronson NK, Ahmedzai S, Bergman B, Bullinger M, Cull A, Duez NJ, et al. The European Organisation for Research and Treatment of Cancer QLQ‐C30: a quality of life instrument for use in international clinical trials in oncology. Journal of the National Cancer Institute 1993;85(5):365‐76.

Aaronson 2011

Aaronson NK, Taphoorn MJ, Heimans JJ, Postma TJ, Gundy CM, Beute GN, et al. Compromised health‐related quality of life in patients with low‐grade glioma. Journal of Clinical Oncology 2011;29:4430‐5.

Armstrong 2006

Armstrong TS, Mendoza T, Gring I, Coco C, Cohen MZ, Eriksen L, et al. Validation of the MD Anderson symptom inventory brain tumor module (MDASI‐BT). Journal of Neuro‐oncology 2006;80(1):27‐35.

Armstrong 2016

Armstrong TS, Grant R, Gilbert MR, Lee JW, Norden AD. Epilepsy in glioma patients: mechanisms, management, and impact of anticonvulsant therapy. Neuro‐oncology 2016;18(6):779‐89.

Armstrong 2016b

Armstrong TS, Vera‐Bolanos E, Acquaye AA, Gilbert MR, Ladha H, Mendoza T. The symptom burden of primary brain tumors: evidence for a core set of tumor‐ and treatment‐related symptoms. Neuro‐oncology 2016;18(2):252‐60.

Brooks 1996

Brooks R. EuroQol: the current state of play. Health policy 1996;37:53‐72.

Cavers 2012

Cavers D, Hacking B, Erridge SE, Kendall M, Morris PG, Murray SA. Social, psychological and existential well‐being in patients with glioma and their caregivers: a qualitative study. Canadian Medical Association Journal 2012;184(7):E373‐82.

Chandler 2013

Chandler J, Churchill R, Higgins J, Lasserton T, Tovey D. Methodological standards for the conduct of new Cochrane Intervention Reviews. London, UK: Cochrane Collaboration2013.

Choi 2012

Choi CW, Stone RA, Kim KH, Ren D, Schulz R, Given CW, et al. Group‐based trajectory modeling of caregiver psychological distress over time. Annals of Behavioral Medicine 2012;44(1):73‐84.

Cochrane CCG 2016

Cochrane Consumers and Communication Group. Resources for authors ‐ data extraction template. http://cccrg.cochrane.org/author‐resources.

Crawford 2001

Crawford JR, Henry JD, Crombie C, Taylor EP. Normative data for the HADS from a large non‐clinical sample. British Journal of Clinical Psychology 2001;40(4):429‐34.

Durand 2015

Durand T, Bernier MO, Leger I, Taillia H, Noel G, Psimaras D, et al. Cognitive outcome after radiotherapy in brain tumor. Current Opinion in Oncology 2015;27(6):510‐5.

Given 1992

Given CW, Given B, Stommel M, Collins C, King S, Franklin S. The caregiver reaction assessment (CRA) for caregivers to persons with chronic physical and mental impairments. Research in Nursing and Health 1992;15(4):271‐83.

Glantz 2009

Glantz MJ, Chamberlain MC, Liu Q, Hsieh CC, Edwards KR, Van Horn A, et al. Gender disparity in the rate of partner abandonment in patients with serious medical illness. Cancer 2009;115(22):5237‐42.

Grant 2015

Grant R, Bulbeck H, Oliver K, Quinn G, MacDonald L, Day J, et al. The UK top 10 clinical research priorities in neuro‐oncology. Neuro‐oncology: BNOS 2015 Abstracts2015; Vol. 17:viii16‐viii21.

Higgins 2011

Higgins JPT, Altman DG, Sterne JAC. Chapter 8: Assessing risk of bias in included studies. In: Higgins JP, Green S, editor(s). Cochrane Handbook for Systematic Reviews of Interventions Version 5.1.0 (updated March 2011). The Cochrane Collaboration, 2011. Available from: handbook.cochrane.org. Updated March 2011. The Cochrane Collaboration.

Jiang 2013

Jiang Y, Terhorst L, Donovan HS, Weimer JM, Choi CW, Schulz R, et al. Locke‐Wallace short marital‐adjustment test: psychometric evaluation in caregivers for persons with primary malignant brain tumor. Journal of Nursing Measurements 2013;21(3):502‐15.

Klein 2001

Klein M, Taphoorn MJB, Heimans JJ, van der Ploeg HM, Vandertop WP, Smit EF, et al. Neurobehavioral status and health‐related quality of life in newly diagnosed high‐grade glioma. Journal of Clinical Oncology 2001;19:4037‐47.

Macartney 2014

Macartney G, Harrison MB, VanDenKerkhof E, Stacey D, McCarthy P. Quality of life and symptoms in pediatric brain tumor survivors: a systematic review. Journal of Pediatric Oncology Nursing 2014;31(2):65‐77.

Macmillan/You Gov 2016

Macmillan/You Gov. Under pressure: the growing strain on cancer carers. www.macmillan.org.uk/documents/campaigns/under‐pressure‐the‐growing‐strain‐on‐cancer‐carers‐macmillan‐cancer‐support‐september‐2016.pdf.

McHorney 1993

McHorney CA, Ware JE, Raczek AE. The MOS 3‐item short‐form health survey (SF‐36): II. Psychometric and clinical tests of validity in measuring physical and mental health constructs. Medical Care 1993;31(3):247‐63.

Minaya 2012

Minaya P, Baumstarck K, Berbis J, Goncalves A, Barlesi F, Michel G, et al. The CareGiver Oncology Quality of Life questionnaire (CarGOQoL): development and validation of an instrument to measure the quality of life of the caregivers of patients with cancer. European Journal of Cancer 2012;48(6):904‐11.

Moore 2013

Moore G, Collins A, Brand C, Gold M, Lethborg C, Murphy M, et al. Palliative and supportive care needs of patients with high‐grade glioma and their carers: a systematic review of qualitative literature. Patient Education and Counseling 2012;91(2):141‐53.

Mukand 2001

Mukand JA, Blackinton DD, Crincoli MG, Lee JJ, Santos BB. Incidence of neurologic deficits and rehabilitation of patients with brain tumors. American Journal of Physical Medicine & Rehabilitation 2001;80(5):346‐50.

NHS England 2014

NHS England, NHS improving quality. Commitment for carers: report of the findings and outcomes. 2014.

Ostrom 2014

Ostrom QT, Gittleman H, Liao P, Rouse C, Chen Y, Dowling J, et al. CBTRUS statistical report: primary brain and central nervous system tumors diagnosed in the United States in 2007‐2011. Neuro‐oncology Oct 2014;16(Suppl 4):iv1‐63.

Ownsworth 2015

Ownsworth T, Goadby E, Chambers SK. Support after brain tumor means different things: family caregivers' experiences of support and relationship changes. Frontiers in Oncology 2015;5(33):eCollection 2015.

Pearlin 1978

Pearlin LI, Schooler C. The structure of coping. Journal of Health and Social Behavior 1978;19(1):2‐21.

Radloff 1977

Radloff LS. The CES‐D scale a self‐report depression scale for research in the general population. Applied Psychological Measurement 1977;1(3):385‐401.

Rooney 2011

Rooney AG, Carson A, Grant R. Depression in cerebral glioma patients: a systematic review of observational studies. Journal of the National Cancer Institute 2011;103(1):61‐76.

Sterckx 2013

Sterckx W, Coolbrandt A, Dierckx de Casterle B, van den Heede K, Decruyenaere M, Borgenon S, et al. The impact of a high‐grade glioma on everyday life: a systematic review from the patient's and caregiver's perspective. European Journal of Oncology Nursing 2013;17(1):107‐17.

Taphoorn 2010

Taphoorn MJB, Claassens L, Aaronson NK, Coens C, Mauer M, Osoba D, et al. An international validation study of the EORTC brain cancer module (EORTC QLQ‐BN20) for assessing health‐related quality of life and symptoms in brain cancer patients. European Journal of Cancer 2010;46(6):1033‐40.

van Loon 2015

van Loon EM, Heijenbrok‐Kal MH, van Loon WS, van den Bent MJ, Vincent AJ, de Koning I, et al. Assessment methods and prevalence of cognitive dysfunction in patients with low‐grade glioma: a systematic review. Journal of Rehabilitation Medicine 2015;47(6):481‐8.

Weitzner 1995

Weitzner MA, Meyers CA, Gelke CK, Byrne KS, Levin VA, Cella DF. The functional assessment of cancer therapy (FACT) scale. Development of a brain subscale and revalidation of the general version (FACT‐G) in patients with primary brain tumors. Cancer 1995;75(5):1151‐61.

Weitzner 1999

Weitzner MA, Jacobsen PB, Wagner H, Friedland J, Cox C. The Caregiver Quality of Life Index‐Cancer (CQOLC) scale: development and validation of an instrument to measure quality of life of the family caregiver of patients with cancer. Quality of Life Research 1999;8(1):55‐63.