Notificación a los padres del estado de portador del recién nacido identificado mediante el cribado habitual de gota de sangre
Información
- DOI:
- https://doi.org/10.1002/14651858.CD003859.pub2Copiar DOI
- Base de datos:
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- Cochrane Database of Systematic Reviews
- Versión publicada:
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- 18 octubre 2004see what's new
- Tipo:
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- Intervention
- Etapa:
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- Review
- Grupo Editorial Cochrane:
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Grupo Cochrane de Consumidores y comunicación
- Copyright:
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- Copyright © 2013 The Cochrane Collaboration. Published by John Wiley & Sons, Ltd.
Cifras del artículo
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Autores
Contributions of authors
Sandy Oliver ‐ lead review author and guarantor for the review, developed the review protocol, gave key methodological and analytical input, led on writing the final review.
Tami Lempert ‐ conducted the searches and screening of articles, co‐ordinated the collection of articles, contributed to the analysis, and wrote the first drafts of the review.
Josephine Kavanagh ‐ led the development of the search strategy, and commented on the final draft of the review.
Ruth Stewart ‐ supported the development of the protocol and the search strategies, and helped write the final review.
Carol Dezateux ‐ as the topic expert, gave valuable input into the development of the protocol, and the final review, providing a policy perspective.
Sources of support
Internal sources
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Higher Education Funding Council for England (Central Government), UK.
External sources
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NHS London Office R&D, UK.
Declarations of interest
Carol Dezateux is deputy director of the UK Newborn Screening Programme Centre, and a member of the National Screening Committee and its Child Health Sub Group. Sandy Oliver and Ruth Stewart are members of the Parent Support Research Team of the UK Newborn Screening Programme Centre. The views expressed here are the views of the authors and do not represent the UK Newborn Screening Programme Centre, the National Screening Committee or its Child Health Sub Group.
Acknowledgements
The work described in this report was undertaken by the Perspectives, Participation and Research team at the Social Science Research Unit, Institute of Education, University of London, following methods developed by the Evidence‐informed Policy and Practice Information and Coordinating Centre (EPPI‐Centre) there. Funding for the review was received from NHS London Research and Development Office. Support for Carol Dezateux is through herHEFCE‐funded post at the Institute of Child Health, University College London. The views expressed in this report are those of the authors and not necessarily those of the funders.
We would like to acknowledge the valuable contribution of the members of the Advisory Group to this project: Arona Ahmed, Elizabeth Anionwu, Helen Bedford, Naomi Brecker, Tammi Cudmore‐Ray, Dian Donnai, Vesna Graham, Anne Green, Alison P Hill, Fred Kavalier, Sharryn McLaughlin, Richard Mortimer, Barbara Salmon, and Rosalind Skinner.
This review was refereed by editors and four external peer reviewers (including two 'consumers') of the Cochrane Consumers and Communication Review Group. We acknowledge the support of staff and editors of the Review Group during the conduct of this review, particularly Dr. Sophie Hill as contact editor.
Version history
| Published | Title | Stage | Authors | Version |
| 2004 Oct 18 | Disclosing to parents newborn carrier status identified by routine blood spot screening | Review | Sandy Oliver, Carol Dezateux, Josephine Kavanagh, Tami Lempert, Ruth Stewart | |
| 2002 Oct 21 | Disclosing carrier status to parents following newborn screening | Protocol | Sandy Oliver, Carol Dezateux, Josephine Kavanagh, Tami Lempert, Ruth Stewart | |
Differences between protocol and review
The protocol for this review was entitled "Disclosing carrier status to parents following newborn screening" (Oliver 2002).
