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Cochrane Database of Systematic Reviews

Disclosing to parents newborn carrier status identified by routine blood spot screening

Información

DOI:
https://doi.org/10.1002/14651858.CD003859.pub2Copiar DOI
Base de datos:
  1. Cochrane Database of Systematic Reviews
Versión publicada:
  1. 18 octubre 2004see what's new
Tipo:
  1. Intervention
Etapa:
  1. Review
Grupo Editorial Cochrane:
  1. Grupo Cochrane de Consumidores y comunicación

Copyright:
  1. Copyright © 2013 The Cochrane Collaboration. Published by John Wiley & Sons, Ltd.

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Autores

  • Sandy Oliver

    Correspondencia a: EPPI‐Centre, Social Science Research Unit, Institute of Education, University of London, London, UK

    [email protected]

  • Carol Dezateux

    Centre for Paediatric Epidemiology and Biostatistics, Institute of Child Health, London, UK

  • Josephine Kavanagh

    Evidence for Policy and Practice Information and Co‐ordinating Centre, Social Science Research Unit, Institute of Education, University of London, London, UK

  • Tami Lempert

    Southampton Solent University, Southampton, UK

  • Ruth Stewart

    EPPI‐Centre, Social Science Research Unit, Institute of Education, University of London, London, UK

Contributions of authors

Sandy Oliver ‐ lead review author and guarantor for the review, developed the review protocol, gave key methodological and analytical input, led on writing the final review.
Tami Lempert ‐ conducted the searches and screening of articles, co‐ordinated the collection of articles, contributed to the analysis, and wrote the first drafts of the review.
Josephine Kavanagh ‐ led the development of the search strategy, and commented on the final draft of the review.
Ruth Stewart ‐ supported the development of the protocol and the search strategies, and helped write the final review.
Carol Dezateux ‐ as the topic expert, gave valuable input into the development of the protocol, and the final review, providing a policy perspective.

Sources of support

Internal sources

  • Higher Education Funding Council for England (Central Government), UK.

External sources

  • NHS London Office R&D, UK.

Declarations of interest

Carol Dezateux is deputy director of the UK Newborn Screening Programme Centre, and a member of the National Screening Committee and its Child Health Sub Group. Sandy Oliver and Ruth Stewart are members of the Parent Support Research Team of the UK Newborn Screening Programme Centre. The views expressed here are the views of the authors and do not represent the UK Newborn Screening Programme Centre, the National Screening Committee or its Child Health Sub Group.

Acknowledgements

The work described in this report was undertaken by the Perspectives, Participation and Research team at the Social Science Research Unit, Institute of Education, University of London, following methods developed by the Evidence‐informed Policy and Practice Information and Coordinating Centre (EPPI‐Centre) there. Funding for the review was received from NHS London Research and Development Office. Support for Carol Dezateux is through herHEFCE‐funded post at the Institute of Child Health, University College London. The views expressed in this report are those of the authors and not necessarily those of the funders.

We would like to acknowledge the valuable contribution of the members of the Advisory Group to this project: Arona Ahmed, Elizabeth Anionwu, Helen Bedford, Naomi Brecker, Tammi Cudmore‐Ray, Dian Donnai, Vesna Graham, Anne Green, Alison P Hill, Fred Kavalier, Sharryn McLaughlin, Richard Mortimer, Barbara Salmon, and Rosalind Skinner.

This review was refereed by editors and four external peer reviewers (including two 'consumers') of the Cochrane Consumers and Communication Review Group. We acknowledge the support of staff and editors of the Review Group during the conduct of this review, particularly Dr. Sophie Hill as contact editor.

Version history

Published

Title

Stage

Authors

Version

2004 Oct 18

Disclosing to parents newborn carrier status identified by routine blood spot screening

Review

Sandy Oliver, Carol Dezateux, Josephine Kavanagh, Tami Lempert, Ruth Stewart

https://doi.org/10.1002/14651858.CD003859.pub2

2002 Oct 21

Disclosing carrier status to parents following newborn screening

Protocol

Sandy Oliver, Carol Dezateux, Josephine Kavanagh, Tami Lempert, Ruth Stewart

https://doi.org/10.1002/14651858.CD003859

Differences between protocol and review

The protocol for this review was entitled "Disclosing carrier status to parents following newborn screening" (Oliver 2002).

PICO

Population
Intervention
Comparison
Outcome

El uso y la enseñanza del modelo PICO están muy extendidos en el ámbito de la atención sanitaria basada en la evidencia para formular preguntas y estrategias de búsqueda y para caracterizar estudios o metanálisis clínicos. PICO son las siglas en inglés de cuatro posibles componentes de una pregunta de investigación: paciente, población o problema; intervención; comparación; desenlace (outcome).

Para saber más sobre el uso del modelo PICO, puede consultar el Manual Cochrane.