Elements of Family‐centred Care

Evaluative Items

Recognising the family as a constant in the child's life

1. Family as the principle context for the provision of a child's health care

Facilitating parent‐professional collaboration at all levels of health care

2. Promoting and utilizing parent‐professional collaboration and partnerships

Honouring the racial, ethnic, cultural, and socioeconomic diversity of families

3. Respect for family diversity

Recognizing family strengths and individuality and respecting different methods of coping

4. Recognising the strengths and capabilities of families

5. Recognising different methods of family coping

Sharing complete and unbiased information with families on a continuous basis

6. Complete sharing of all relevant information with families

Encouraging and facilitating family‐to‐family support and networking

7.Promoting parent‐to‐parent and family‐to‐family support

Responding to child and family developmental needs as part of health care practices

8. Attention to the developmental needs of children and families as part of health care delivery

Adopting policies and practices that provide families with emotional and financial support

9. Recognising and responding to family emotional needs

10. Recognising and responding to family financial needs

Designing health care that is flexible, culturally competent, and responsive to family needs

11. Flexible delivery of health care to children and their families

12. Culturally‐competent delivery of health care

13. Recognising and responding to family‐identified needs

Outcome category

Data

Components of primary outcome 'inadequate clinical care' (Table 45 of Bolton 2004)

Inpatient n =143, CBPU n = 145

Inadequate control of nausea and vomiting

Inpatient 13 (9.4%); CBPU 6 (4.4%); OR 0.5 (95%CI 0.3 to 1.4)

Inadequate pain control

Inpatient 21 (14.8%); CBPU 13 (9.6%); OR 0.61 (95% CI 0.3 to 1.4)

Medical attention not received within 30 mins

Inpatient 1 (0.7%); CBPU 0; absolute difference 0.7%

Delayed discharge

Inpatient 36 (25.2%); CBPU 9 (6.2%); OR 0.2 (95% CI 0.1 to 0.4)

Unplanned consultation within 7 days

Inpatient 52 (36.4%); CBPU 49 (33.8%); OR 0.9 (95% CI 0.5 to 1.5)

Secondary clinical outcomes results (no significant differences) (Table 46 of Bolton 2004)

Inpatient n =143, CBPU n = 145

Incidence of significant haemorrhage

Inpatient 1 (0.7%), CBPU 0

Incidence of respiratory events

Inpatient 1 (0.7%), CBPU 0

Incidence of readmission within 7 days

Inpatient 5 (3.5%), CBPU 7 (4.8%)

Admission to ICU

Inpatient 1 (0.7%), CBPU 0

Deaths due to complications

Inpatient 0, CBPU 0

Severe vomiting

Inpatient 10 (7%); CBPU 8 (5.5%)

Pain score greater than that acceptable by parents

Inpatient 45 (31.5%), CBPU 51 (32.5%)