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Programas de entrenamiento y apoyo para voluntarios de tratamientos paliativos en ámbitos comunitarios

Information

DOI:
https://doi.org/10.1002/14651858.CD009500.pub2Copy DOI
Database:
  1. Cochrane Database of Systematic Reviews
Version published:
  1. 20 July 2015see what's new
Type:
  1. Intervention
Stage:
  1. Review
Cochrane Editorial Group:
  1. Cochrane Consumers and Communication Group

Copyright:
  1. Copyright © 2015 The Cochrane Collaboration. Published by John Wiley & Sons, Ltd.

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Authors

  • Dell Horey

    Correspondence to: College of Science, Health and Engineering, La Trobe University, Bundoora, Australia

    [email protected]

  • Annette F Street

    La Trobe University, Bundoora, Australia

  • Margaret O'Connor

    Palliative Care Research Team, School of Nursing and Midwifery, Monash University, Frankston, Australia

  • Louise Peters

    Palliative Care Research Team, School of Nursing and Midwifery, Monash University, Frankston, Australia

  • Susan F Lee

    Palliative Care Research Team, School of Nursing and Midwifery, Monash University, Frankston, Australia

Contributions of authors

The review was conceived by all review authors, who also all contributed to its preliminary design. The protocol (Horey 2011) was planned and written by DH, with contributions from AS. LP designed the original search strategy. All authors were involved in aspects of the search. MO'C, SL and LP were responsible for searching the grey literature. DH and AS screened all titles and abstracts and DH collated all retrieved papers. DH with AS and SL independently applied inclusion criteria. All authors were to be involved in the resolution of any discrepancies in data extraction and 'Risk of bias' assessment if they had occurred. DH was responsible for writing the review. All authors contributed to interpretation and development of the review's conclusions.

Sources of support

Internal sources

  • Faculty of Health Sciences, La Trobe University, Australia.

    Salaries

  • Palliative Care Research Team, Monash University, Australia.

    Salaries

External sources

  • No sources of support supplied

Declarations of interest

None known

Acknowledgements

We gratefully acknowledge the staff and editors of the Consumers and Communication Review Group for their advice and assistance in the preparation of this review; particularly Dr Rebecca Ryan; Mr John Kis‐Rigo, Trial Search Coordinator for his expert help with designing the search strategy; and Ms Anneliese Synnot for conducting the searches. We also thank Dr Joanne McKenzie for her statistical expertise; the peer reviewers including palliative volunteer coordinators; Ms Stacey Heer, Ms Barb Young and Ms Louisa Thompson for their feedback on drafts of the protocol and/or review; Ms Sharon Karasmanis, Librarian at La Trobe University for her assistance with the initial searches; Ms Sharon Kramer from the Australasian Cochrane Centre for her advice; and Ms Kaori Shimoinaba for her help in translating Japanese web‐pages.

Version history

Published

Title

Stage

Authors

Version

2015 Jul 20

Training and supportive programs for palliative care volunteers in community settings

Review

Dell Horey, Annette F Street, Margaret O'Connor, Louise Peters, Susan F Lee

https://doi.org/10.1002/14651858.CD009500.pub2

2011 Dec 07

Training and supportive programs for palliative care volunteers in community settings

Protocol

Dell Horey, Annette F. Street, Margaret O'Connor, Louise Peters, Susan Lee

https://doi.org/10.1002/14651858.CD009500

Differences between protocol and review

The review was updated from the protocol (Horey 2011) to meet the MECIR standards introduced in 2012. In addition, methodological aspects of the review were clarified, specifically aspects of the categorisation of the review outcomes and how they were to be managed. The methodology was amended to reflect the approach to be used in future updates.

Keywords

MeSH

Medical Subject Headings (MeSH) Keywords

Medical Subject Headings Check Words

Humans;

PICOs

Population
Intervention
Comparison
Outcome

The PICO model is widely used and taught in evidence-based health care as a strategy for formulating questions and search strategies and for characterizing clinical studies or meta-analyses. PICO stands for four different potential components of a clinical question: Patient, Population or Problem; Intervention; Comparison; Outcome.

See more on using PICO in the Cochrane Handbook.

Flow diagram.
Figures and Tables -
Figure 1

Flow diagram.

Table 1. Results of search of grey literature

Source searched

Date

Potential inclusions

Result

Meta Register of Controlled trials, (www.controlled‐trials.com/mrct/search.html)

21 Jan 2012

1 result from search engine. REST – Reducing End of life Symptoms with Touch. [NIH ClinicalTrials.gov Register (International) ‐ subset of randomised trial records]. Purpose of study to determine whether massage therapy is effective in reducing pain and distress and improving quality of life among cancer patients at life's end. Study used volunteers to provide intervention. Not a study of volunteer support interventions.

No relevant studies

Meta Register of Controlled trials, (www.controlled‐trials.com/mrct/search.html)

21 Jan 2012

8 results from search engine related to interventions regarding patient care. 'Voluntary' referred to voluntary consent.

No relevant studies

International Clinical Trials Registry Platform Search Portal (www.who.int/trialsearch)

1 Jan 2012

299 records for 286 trials checked. 1 possible study excluded as it referred to spousal carers rather than designated volunteers.

No relevant studies

International Clinical Trials Registry Platform Search Portal (www.who.int/trialsearch)

21 Jan 2012

0 results from search engine.

No relevant studies

CareSearch (www.caresearch.com.au/)

31 Jan 2012

0 results from search engine.

No relevant studies

The National Gold Standards Framework (UK) (www.goldstandardsframework.nhs.uk; www.goldstandardsframework.org.au)

21 Jan 2012

3 results from search engine: 1 briefing, 1 newsletter, 1 evaluation of Gold Standards Framework.

No relevant studies

NHS UK (www.nhs.uk)

21 Jan 2012

1050 results from search engine including: 1 press release case study of a volunteer; 1 press release re volunteers helping staff 11 Aug 2011 (not referring to research). Others related to stories about volunteering including participating in clinical trials.

No relevant studies

International Association for Hospice and Palliative Care (www.hospicecare.com)

21 Jan 2012

No research reports.

No relevant studies

International Observatory on End of Life Care (www.lancs.ac.uk/shm/research/ioelc/)

21 Jan 2012

49 results from search engine but all excluded including 4 descriptive studies with focus on volunteer roles rather than interventions to support and 1 related to advance care planning.

No relevant studies  

Help the Hospices (www.helpthehospices.org.uk/)

21 Jan 2012

496 results from search engine but none were reports of courses, training or support for volunteers.

No relevant studies

Asia Pacific Hospice Palliative Care Network (APHN) (aphn.wordpress.com)

21 Jan 2012

List of press releases only.

No relevant studies

World Palliative Care Alliance (www.thewpca.org)

21 Jan 2012

260 results from search engine but all referred to press releases, developing country strategies, toolkit, or training manual.

No relevant studies

International Volunteer Programs Association (www.volunteerinternational.org)

21 Jan 2012

15 results from search engine but none related to palliative care.

No relevant studies

Oxford International Centre for Palliative Care (www.sobellhospiceoxford.org)

21 Jan 2012

5 results from search engine but related to jobs and testimonials.

No relevant studies

Palliative Care Australia (www.palliativecare.org.au)

21 Jan 2012

Only links to annual reports, bulletins, strategic plans.

No relevant studies

 

Japan Hospice Palliative Care Foundation (www.hospat.org/english/future.html)

21 Jan 2012

No research reports.

No relevant studies

African Palliative Care Association (www.apca.org.ug)

21 Jan 2012

7 results from search engine related to publications but not related to volunteers. Link to toolkit for establishing services.

No relevant studies

Canadian Hospice Palliative Care Association (www.chpca.net)

21 Jan 2012

No research listed.

No relevant studies

Indian Association of Palliative Care (www.palliativecare.in)

21 Jan 2012

No research directly listed but training described on site and links to journals via Indian Journal of Palliative Care, Cochrane and the International Association for Hospice and Palliative Care (IAHPC).

No relevant studies

National Hospice and Palliative Care Organization (www.nhpco.org)

21 Jan 2012

Members only access to performance measures. Volunteers not mentioned.

No relevant studies

Family Health International (www.fhi.org/en/index.htm)

21 Jan 2012

41 results from search engine but these relate to news or reports on service development and delivery, testimonials, or refer to voluntary counselling and testing in relation to HIV.

No relevant studies

Volunteering Australia (www.volunteeringaustralia.org)

21 Jan 2012

4 results from search engine relate to press releases and reference to two reports: Lee, Shirley. Reflections of Volunteers in Palliative Care; and ECU 2005 Volunteers contributing to a palliative approach in aged care: A model for helping out. Searches on Google Scholar could not locate these.

Two potential reports (which look to be descriptive accounts) could not be found.

WHO (www.who.int)

25 May 2012

Searches conducted in January 2012 (21 and 31 January) and May 2012 (24 and 25 May). Total of 2290 results from search engine. Nothing relevant identified although 7 reports and 1 peer‐reviewed publication were retrieved and assessed for inclusion.

These were descriptive studies. No studies identified that reported support or training for palliative care volunteers.

No relevant studies found

NICE (http://www.nice.org.uk)

25 May 2012 

Total 40 results (3 from "palliative + volunteer" and 37 from "palliative + voluntary") One possible study excluded ‐ Workforce training standard had no references to relevant studies. See http://www.nice.org.uk/guidance/qualitystandards/endoflifecare/WorkforceTraining.jsp

No relevant studies found

Red Cross (www.redcross.org.au)

25 May 2012

No studies found.

No relevant studies found

International Volunteering Research (www.ivr.org.uk)

21 Jan 2012

Two descriptive studies identified.

No relevant studies found

CRUSE Bereavement Care

(www.crusebereavementcare.org.uk)

Organisation for the recruitment, training and support of bereavement volunteers

21 Jan 2012

 

Reference to 2 possible studies but these excluded. 1 was a feasibility study of volunteer program rather than an intervention to support volunteers, and the other, specifically related to AIDS, describes task shifting which involves training lower qualified staff to retain knowledge in resource poor areas.

No relevant studies found

Figures and Tables -
Table 1. Results of search of grey literature